Liam's Fight With Neurofibromatosis Has Officially Begun

Last week we got news that no parent should ever receive. We found out that Liam, my little loving three year-old boy will start chemotherapy next week. He has something called Neurofibromatosis (NF), something I planned to write about on my blog 2 weeks ago, and I did, but couldn't bring myself to post. Liam has gone through MRIs for 2 years now, every 6 months to track tumor growth. See, NF causes tumors to grow and although they can grow anywhere on the body, they are known to
grow in the brain. Liam currently has 3 tumors and until last week, they were not growing and no intervention was necessary. Everything has changed and this journey has just begun.

Two weeks ago, when I wrote the other post, Liam was getting his 6 month scheduled MRI and I felt it, the mother's intuition, that something was different this time. I just knew it and decided not to post because I didn't want to jinx anything. The truth is, he has been through so much already and has beaten the odds every single time. We knew this would eventually happen, but it wasn't a reality until last week... an it is still sinking in.

We are waiting for the call now an every time the phone rings, I think it is the oncologist calling to schedule putting in his central line. That is, after all, the first step to this process. Then, the week after the central line is put in, the chemo treatments will begin. We will travel to Atlanta once a week for 13 weeks and I am terrified of the unknown. I can barely stand to see my son get put to sleep for MRIs every 6 months, much less, suffering daily from chemo. I want to run away with my little boy and never let this happen to him. He's such a happy little boy and I don't want his love of life to change... ever, but this will change us all.  He truly has a smile that makes everyone around him smile an I never want him to lose that.

This is the beginning and I will try to document everything that happens as we go down this long road. After 13 weeks of chemo, we will get a short break before going back for another 9 weeks. It;s going to be tough- physically, emotionally and financially for our family. For this reason, I started a fundraiser for Liam. I want to do something amazing for him, especially after the first 13 weeks come to an end. He deserves something wonderful and I would love for you to make it happen! I don't know what we will do yet; it really depends on the amount of money we raise, but we are thankful for any donations, which will be used only to benefit him in some way- be it gas for our travels, medicine or other little miracles that will bring a smile to his face. Click the Donation Button below to donate any money for Liam.

I will write more about NF and Liam's journey as we go along. Thoughts and prayers are always welcomed as are encouraging words. We hope you join us along the way as we beat NF and fight for a cure like so many other brave boys and girls out there.