Hi, everyone! I hope all is well! I am currently putting together a fundraiser auction for my son, Liam, who was diagnosed with a condition called Neurofibromatosis when he was just over one year old. This disorder causes tumors to grow in the brain which can cause a variety of health issues. We found out then that he had two tumors, but they were not growing and would be monitored closely by his neurologist. However, in September everything changed. His tumors began to grow and, at three years old, he began chemotherapy to help stop growth and shrink the tumors. He has been going through treatment since October, with two hour trips to and from Atlanta each Friday.
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| Liam Playing with Papa and Brother! |
He was actually doing pretty well with treatments and we were hopeful a few weeks ago when he got his MRI. A week later we found out that the tumors were not shrinking, but, in fact, they had grown, almost doubling in size. We just began a new chemotherapy that will be much more intensive, with trips to Atlanta each week for at least 6 months. For this reason, we are reaching out to companies, representatives, and brands to help support Liam in his battle against Neurofibromatosis.
We are currently looking for sponsors to participate in an online auction to help raise money for Liam's treatment and expenses. We will make an auction via my Children Teaching Mama Facebook page with all proceeds going towards Liam's expenses.The auction will also be advertised through several other blogs with PR1-PR4 ratings to increase interest and viewership. In addition, we will constantly advertise via Facebook, Twitter and Google+. Each sponsor will be featured in a photo with their name, website link and any other information you would like included. As a PR3 blog with over 40,000 combined followers, I know sponsors will be pleased with the advertisement received.
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| Being Silly With Big Brother! |
If you would like to be a part of this worthy cause by donating items to be auctioned, please email me at childrenteachingmama@gmail.
Please let me know if you have any questions at all about the auction. Thanks to all who have already donated in some way. We really do appreciate you and thank you so much for your help!
3 comments:
My youngest son's name is Liam. He was born premature and we nearly lost him 4 times in his first 9 days of life. The name Liam means "strong-willed warrior" and your son is the epitome of that definition.
I am the owner of XtremeQpon and GotGiveaways and although I have nothing to donate, I would love to help out any way I can. You can email me at angela at xtremeqpon (dot) com. I would just love to help anyway I can. May I wish you all the best, and all the strength you need.
My son also has Neurofibromatosis and a tumor behind his eye. We grit our teeth every time he gets a MRI that it doesn't get any bigger or else he will have to start Chemo. I wish the best to you all!
I'm sorry that your son has to suffer through this painful experience. I grew up with a genetic disorder, but luckily mine doesn't manifest itself quite like tumors in the brain and also I had a treatment that worked really well to control my symptoms. You may already know about this and have probably done your extensive research but do you think there is a community that you can reach out to, for example, for me I have an online source that is run through a foundation to help those that have my disease, so maybe if you can find one that specifically welcomes those patients who suffer through neurofibromatosis maybe there is a way to make your story known. Or maybe a neurological foundation? I'm sorry to not be able to give any more help. I will definitely keep your son in my thoughts and hope that this situation turns around very quickly. I wish your son and your family all the very best!
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